Good morning everyone. We are happy to be back at home and done with a very long day at the hospital yesterday. Grant was a good boy considering the amount of time time and the unbelievable amount of meds taken!
He is indeed in full remission - no residual cells!!! So - we are now entering the Consolidation phase of treatment. We will continue our weekly clinic appointments for another 8 weeks. THis week and next we will also do at-home chemo with home health on Wednesday, Thursday and Friday. Because of the home meds, Grant's port will have to stay accessed for a good portion of the week. Bad news is no swimming! Good news is - no needles! We'll take it!
We had quite a whirlwind trip. Shortly after we arrived in Chapel Hill on Monday night, my sister Leah called to say that she was in labor (nearly two weeks early!) and was heading to Rex Hospital in Raleigh. Luckily, Grandma and Mike were with us for this trip, so Mama spent the night with Leah's other two boys and Mike relieved her in the morning so she could make it to the hospital for the delivery of Carter Michael Steelman. He is quite a handsome little fellow - looking remarkably like his brothers and cousins and especially his beautiful mommy! We will post photos later!
We were also happy to visit with Dr. Romano for a few minutes yesterday. Grant was having a grumpy day, so he wasn't acting too excited about anything, but he was still happy to see her! We also saw Michael McKinney - who is looking so much better this week! Colby spent most of the day with us. He was waiting to be admitted for another 5 days straight, so he hung out in the clinic until his room was ready. This made our very long day much more bearable! Grant and Colby built Lego's and watched several movies! Colby will turn 6 on Saturday! Happy Birthday, big guy!
OK - am I updated??? Home health will come today. Eden has dance. School is out tomorrow. Joella and her family are on vacation. Leah has a new baby. Mike is flying to Utah today for summer school. Aly is unpacking. Joel is hanging out with Pa at the office. I am sleepy! That's all I got!
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About Grant
Grant was diagnosed with ALL T-Cell Leukemia on April 26, 2007. He had been sick almost all winter, getting several ear infections, colds and coughs, strep throat, stomach bugs, fevers, and general feel-bad-all-overness. When he just could not get better, and earned the nickname "The Hulk" because he was starting to look so green, his Mama knew that something was not right. After another trip to the doctor, a blood test was ordered, and within a few hours he and his family were on their way to UNC Children's Hospital in Chapel Hill, one of the top pediatric oncology centers in the nation. The wonderful doctors there are already making progress, and beating this disease.
Anyone who knows Grant knows that he loves his Super Heroes - Superman, Spiderman, Wolverine, Batman, Power Rangers, and on and on. He doesn't just love them, he loves to become them, often dressing up and acting like the Hero of the Day. I think we can all agree that Grant is going to be our favorite Super Hero, and he is going to prove to everyone just how strong and invincible he is!
Contributors
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Our Friends
- Because Wendi Said So
- Billi and Brett
- Isaiah - Strong and Courageous
- Leah Steelman's Blogspot
- Life of Lauren
- Maddie Sargent
- Michael McKinney's Page
- One Soxy Pirate
- Owen Fincher
- Super Grant's Relay for Life Team
- Tarheel Superman
- The Church of Jesus Christ of Latter-day Saints
- The Dart Board
- Tyler Black
- William Bunn
2 comments:
Amen for the busy day yesterday!! But considering all the activities, it was a fabulous day! Grant is just a totally remarkable little guy. If all he does is act a little grumpy... wow. Which one of us could do so well in a similar situation!!
It was so "serendepetious" that Mike and I were both on this trip. Yes- we did the middle of the night trip from the hotel to Leah's so she could leave for the hospital! Then, Mike was "Super Uncle Mike" yesterday morning so I could get to the hospital for the delivery of Carter, and Mike also got Grant and Emily to the early morning appointment at the clinic... super in many ways.
How many blessings can you stand in one day? I'm afraid to count, cause I know that I am probably on the short-end of deserving all of them. I am so grateful for such a memorable day. (In the midst of all, Joella and Aly and their 5 children also made the 4 hour trip to Raleigh, and then Aly turned around with her boys and did the 4 hours back home. Whew.)
Love to you all.
Very busy day for you all!! But wonderful news for the family!
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