Grant is home from his monthly clinic visit to UNC. Kevin had to be in Raleigh on Monday for work, so he and Grant made the trip this time. Grant was so excited to be able to spend a couple of days with Aunt Leah and her family in Rollesville. He loves the Steelmans! Clinic was pretty standard..... Spinal tap, IT Methotrexate, Vincristine, and the 1st day of the dreaded Prednisone! Grant asked me this morning if he was on steroids. I told him "yes" and he responded - "well, that's why I feel so funny!" (funny as in cranky and weird, not loving and jovial!) He said that he's going to try to remember that its the medicine that makes him feel so strange and he will try to act and normal as possible! He's such a sweet kid!
Since my last post we've had a lot of fun stuff happening.
Kevin and I took a trip to DC to see the Redskins play the Steelers on Monday Night Football. We had a great trip and really enjoyed the game even though we lost miserably! We got to the stadium really early and spent a couple of hours watching the teams warm up and got to see Steve Young and Emmet Smith do the pre-game show. Fed Ex Field is amazing! It was a beautiful evening for a football game.
Earlier in the day we spent a couple of hours downtown in Washington DC. We visited the Capitol Building, the Washington Monument, the Native American Museum and had lunch at the Smithsonian. Crews were already busy constructing the stage on the steps of the Capitol for the Inauguration in January! I can't imagine how exciting it would be to be on the National Mall for that historic day!
Last month I also was able to do a Twilight trip with my crazy, vampire lovin' girlfriends. We made a day trip to Jacksonville for the movie, went out to dinner and did a bunch of shopping at Sam's. We were giddy like teenagers and wore our Twilight t-shirts and took pictures in front of the theater! It was the most fun ever! I am truly a geek!
We had a wonderful Thanksgiving. We did lunch with the Hancocks and dinner with the Nelsons. We always get to eat A LOT on Thanksgiving. We were excited that Grant was feeling well this year. Last Thanksiving was our lowest of the low! Michael McKinney had recently passed away and we were really missing him. Grant was just finishing a 21 day cycle of Dexamethazone - the worst medicine that he ever had to take! He was 15 lbs heavier than normal from all of the swelling and was completely bald. I had worked myself into such a state that I ended up in the hospital for a colonoscopy to see what was going on. Turns out that stress and anxiety can actually burn ulcers right into your colon! Who knew....
This year life seems almost like normal - as normal as life can be, I guess. We are so grateful for our many blessings, especially for our family and friends. We could have never done this without all of you.
I have thought a lot recently about my Grandma. She passed away in 1997 just a few days before Thanksgiving. She had lived a full and long life and died in a tragic car accident.
My Grandma had 10 children - 7 boys and 3 girls. My dad was her baby boy. She was the happiest, least stressed out, most laid back person I've ever known. She spent her days making bread, taking care of her family, listening to music on her record player, and swinging on her front porch. She had plenty she could have been worried about or pre-occupied with. Her life was not without loss and sorrow. She lost a child to leukemia, my uncle Denny. He was buried on his 9th birthday. She lost my uncle Ralph in a boat accident just a few years before she died. She sent 4 sons to the military. They served in wars. Her husband, my grandfather, was a commercial fisherman. They lived in the most humble of circumstances in a tiny 3 bedroom home. But she was happy!
Of all of the words I could think of to describe Grandma - the best would be - happy!
I'm grateful for my grandma and the lessons she taught me. I want to be more like her!
I could go on forever, but the school just called and my chemo boy wants to come home! I'll go get him and be happy about it! Maybe I'll even make some bread today!
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5 comments:
Reading your update put a BIG smile on my face.
Love,
LeeAnn
It is so good to hear from you. I had no idea you got ulcers last year! No wonder though with all that was going on.
I'm so glad you've been doing well and having some fun. Your reflections on your grandma are sweet and lovely to read.
Love you,
Kel
Hi Emily,
I can't wait to meet you at Lids for Kids. I'm in the band Still Waters that has performed every year with at this event. We are the praise band at Swanboro UMC. Your blog brought tears to my eyes! I already think you are a lot like your Grandma. Will Grant and your husband be coming to the show? I sure hope so. What a wonderful and courageous little boy you have. It seems to me that you both are teaching each other vaulable lessons everyday. That is an honor and a privilege that so many don't get to share. Thanks for helping with Lids and I'll see you soon!
angie cooper
Hi Angie!
I'm looking forward to the concert too! Jenny was so kind to invite me to perform this year.
Thank you so much for your kind words.
The whole family will be at the concert! Grant is very excited...
See you soon!
Em
Merry Christmas to the Nelson Family! Love you guys and I'm glad to hear that everyone is doing well.
Kristi
http://www.caringbridge.org/visit/mycool
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