Wednesday, February 17, 2010

Sweet William

Our dear friend William had his normal three month scans earlier this week. We were so devastated to hear that he has been scheduled to have several suspicious places biopsied.

Please keep William, his parents Amy & Mark, and his Sissy in your hearts as we all hope and pray for a miracle.

Thursday Morning Update: William has relapsed. His doctors are meeting today to decide what to do next.

I don't even know what to say. You can visit his Caringbridge site by clicking on the William Bunn link on the far right column.

Friday, February 5, 2010

Nickel'd and dime'd to death!

January can carry a pretty hefty financial load.

Everyone is still reeling from the Christmas spending extravaganza, baseball and softball registration begins, basketball games are in full swing, the tax man cometh, etc....

And right in the middle of it all.....the fundraising begins. Relay for Life really starts to kick-off its efforts, Jump Rope for Heart leads its way into Valentine's Day, and this year, we also got little cardboard boxes for Pennies for Patients, a division of The Leukemia Lymphoma Society.

I overheard one of my friends the other day lamenting to another mom that she was being nickle'd and dime'd to death!

Offensive - no. Thought provoking - yes.

I come from a large family. I remember at times it was difficult financially. My sisters and I often didn't have/wear/drive what the other kids did. My brothers were the youngest, and thankfully, the Hancock family economic climate had changed quite a bit by the time they were old enough to even remember the pre-Farm Bureau life! (Farm Bureau rocks, btw!)

That being said, I know very few people in my everyday circle of friends who can't spare an animal cracker box full of loose change. In fact, I think even in the Atlantic Veneer stage of life that my parents would have gladly filled up a box with spare change to send in to the school. They most probably would have sent in not 1 or 2.... but 6 such boxes! They surely would have even taken the opportunity in doing so to have a conversation with their children about the blessings of financial independence and the blessings of having healthy children. Having been touched by leukemia (my father lost a brother to childhood leukemia), they may have even talked to us about what cancer was and that it was an epidemic. They would have used the little cardboard box as a teaching tool.

There are plenty of things they might have done....but exclaiming that they were being nickle'd and dime'd to death wouldn't have been one of them! I count that among one of the reasons why they are and were the best parents in the world!

Before Grant's diagnosis, I must tell you that I never really even noticed what those little quarter collection displays at the check-out counter at Rite Aid were for! The kids loved to fill up the little quarter slots, but that was about all I knew. However, after April of '07, I became personally connected with The Leukemia Lymphoma Society.

Of all of the cancer related research, support, advocacy groups out there...very few offer any assistance to people/families who are battling cancer. Most fund research and research is critical. But at diagnosis, financial assistance is critical, as well. The Leukemia Lymphoma Society has a Patient Assistance program that will reimburse medical expenses of $500 for up to two years. Read back to summer 2007 and you will see that we visited the hospital every week. This schedule lasted for nine months. Needless to say, it didn't take long to tally up $500 worth of receipts for reimbursement! Each visit to the clinic cost somewhere in the vicinity of $5000. Thankfully, our insurance was in-network for UNC and we have wonderful support from our families, but spending the night in a hotel once a week can take its toll.

In response to the nickel and dime statement, I would characterize that the better part of 2007 as being $500'd to death! And for the parents of leukemia patients, they are doing so in the face of real death! DEATH! They are spending every waking moment wondering if this will be the day that they will hear the news that their kid isn't going to make it, or they will walk into the clinic and find that the 7 year old who was playing lego's last Tuesday died the day before while recovering from his bone marrow transplant, or the 15 year old who sat in the lobby doing Algebra homework last Tuesday died of pneumonia on Thursday!

And I hope that none of you ever, ever, ever have to experience that! Take my word for it, you do not want to go to there! I'm a little nauseous just thinking about it.

So - why the soap box today?

My friend Teri (Teri Freeman for you locals) is doing something amazing! She is running a marathon....yes, a marathon.... a 26 mile race! I can't even drive 26 miles without stopping for a Dr. P. But, Teri is running a MARATHON to raise money and awareness for The Leukemia Lymphoma Society!

And she is doing it to honor my little boy!

How about that?

I can't tell you how honored I am that Teri has chosen to do this.

AND - here's the kicker - we are going to help her do it!

How, you may ask!?

By clicking on this nifty little link and donating some nickels and dimes and even tens and twenties to the Leukemia Lymphoma Society!

Now.... go do it!

I did!

http://pages.teamintraining.org/ri/rnr10/Teri12

Monday, November 16, 2009

Giving Thanks

So, Thanksgiving is right around the corner -already! I realize that my posts are getting shorter and shorter and fewer and fewer..... Its not that I don't have anything to say. I simply find it so hard to find time to say it!

Grant finished a chemo week round of steroids yesterday. We are always so grateful to be finished with steroids. We started a new cycle this past Tuesday with a spinal tap and IT Methotrexate. We were happy to be able to visit with Jane and to see William and his family for a few moments as we were leaving. William was in for a round of scans to monitor his remission from Neuroblastoma. Evidently, everything was not exactly at it should be, so he is in again today for an MRI. We are praying for clean scans today!

To catch everyone up, our life in synopsis.....

Soccer is over.
Basketball has begun.
Christmas recital rehearsals are in full swing.
I have to write to Christmas program for church!
My mom is now a skinny person!
I wish both of my brothers lived closer to home...
Leah, too! (3 hours is still too far away)
My once beautiful landscaping needs some "welcome to Fall" assistance.
My house needs a good cleaning...
My Bishop/husband is working really hard - at work and at church!
I need a haircut and will soon need color as Aly keeps finding grey hairs intermingled with the auburn ones! Really - I'm still 33 -what's up with that?
Eden lost her last tooth, and continues to know just the thing to do to get on my last nerve!
She's almost as tall as me.
I noticed yesterday as we left for church that she looked like she was going to the prom.
She's beautiful!
Jacob is the life of the party - and enjoys throwing one every afternoon in my yard!
Grant could build a fully functioning space station with Legos...and would like to do so either in the middle of the living room or on the dining room table.
Its not easy to keep Jacob away from Grant's Lego creations, btw...
My life is so busy... but I am so blessed!
I love my husband.
I love my kids.
I love my job - the poeple I work with, the parents, and especially all of the sweet kids that I teach!
I love my Ma & Pa!
I love my sisters and their husbands.
I love my brothers and their wives.
I love all of my exceptionally beautiful and talented nieces and nephews!
I love my massive extended family and am so grateful to live out my daily life with them.
I love all of my good friends..especially Ashley, who is really more like my sister!
I love my life - its hard, it tiring, its amazingly wonderful!

8:23 pm Update.... William is all good! Scans came back clean today!

Wednesday, September 23, 2009

Good counts!

We're home from our monthly chemo trip. We had a great day! Good counts, fun visit with Jane, and lots of mommy/Grant quality time!

Monday, September 14, 2009

Pictures

New nurses station.... They didn't have one before! (just a little closet!)





Ms. Cindy checking Grant in...
It was opening day, so she wore her pearls!


Grant and his buddy William
William was doing is 1 year post transplant visit &
he is still cancer free!

Dr. Blatt checking out Super Grant



Tuesday, August 18, 2009

This is just too nice!

So, we are are the new pediatric cancer clinic at UNC this morning. At the moment, Grant is blissfully playing with his pal William. They are opening boxes of new Transformers that have been donated for the new playroom. Owen and his dad are playing "Sorry" on a real game table. Across the hall, kids are playing "Starfall" at the 2 new computer stations! I am sitting on a beautifully uphosltered bench where I have enough room to sit.... and type..... and breathe! What's going on here?

Seriously, the waiting room at this place is bigger than the whole clinic across the street!

I didn't even wear make-up!? Who knew.... I feel like I should have on heels instead of flip-flops!

So far, counts look great. The sedation clinic (spinal tap) is a little slow to get going. They haven't started yet and I think we are #8 or #9 on the list, so we'll still be here a while. That's ok. I feel like I'm on vacation at a spa! OK - maybe that's taking it a little too far!

I took a bunch of pictures. I'll post later!